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"Detectives" Hunt for Dystonia Cure in Garfield Park

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Scavenger Hunt Raises Awareness & Research Funds for Disabling Brain Disorder

INDIANAPOLIS - eTradeWire -- Local volunteers will be hunting Garfield Park for a cure for dystonia, a little-known but surprisingly common neurological disorder. 27-year-old Chelsi Christman of Muncie experiences tremors, jerking movements, and painful muscles contractions throughout her body. Sarah Ernstberger of Indianapolis is a high school teacher who has experienced chronic, painful muscle spasms in her neck and hand since childhood. Sunshine Fox's 8-year-old son Aidan was diagnosed at age 3, but the underlying cause for his complex case remains unknown. He uses a wheelchair for mobility and is non-verbal. The family travels from their home in Whiteland to Cincinnati for his care. All three women have traveled to Washington DC to advocate on behalf of the dystonia community and push for federal research funding.

The Dystonia Medical Research Foundation is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families.

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WHAT: The 3rd Annual Indy Hunt for a Cure for Dystonia is a scavenger hunt to promote greater awareness and raise funds for medical research. Participants compete for points by answering trivia questions, completing tasks, and collecting items. All ages welcome. Registration is $20 for adults/$15 for children, $60 for family of 4, includes t-shirt. Proceeds benefit the Dystonia Medical Research Foundation.

Dystonia is characterized by extreme, involuntary muscle contractions that result in twisting, repetitive muscle movements as well as sustained, abnormal postures of the body and limbs. There are many types of dystonia that impact people of all ages and backgrounds.

WHEN: Sunday, September 29, 2019. Check in at 1:00 PM. Scavenger Hunt begins at 2:00 PM. Winners announced at 4:00 PM.

WHERE: Garfield Park, 2345 Pagoda Dr, Indianapolis, IN 46203

MEDIA: For more information visit: https://www.dystonia-foundation.org/hunt-indy

Contact
Jessica Feeley
***@dystonia-foundation.org


Source: Dystonia Medical Research Foundation
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Filed Under: Event, Dystonia

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